The 4th Symposium of the International Cystinuria Foundation will be held onSaturday, July 10, 2010, at the NYU Langone Medical Center in New York City.
Patients, families,physicians, and researchers are invited to attend. The biennial event is a forum for both disease education and community building. Join us to learn the latest advancements in cystinuria research, and discuss with others who are affected by the disease.
Topics of discussion this year include advancements in clinical informatics, cystine crystallization studies, and research utilizing the cystinuric mouse model first discussed by Dr. Jay Tischfield in Chicago at the 2006 Cystinuria Symposium. In addition to research, dietary concerns specific to cystinuric patients will be discussed, as well as a historical perspective of the disease to recap the last 200 years since the discovery of cystine stones. In addition to Saturday’s symposium, we are planning an educational dinner Friday night before the symposium, featuring a surgical update by Dr. Michael Grasso, long time friend of the Foundation. Stay tuned for more details and developments!
We are proud to be hosted by NYU this year, highlighting the recent establishment and funding of the Rare Kidney Stone Consortium (www.rarekidneystones.org) under the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) and the Office of Rare Diseases Research (ORDR). Dr. David Goldfarb, Professor of Medicine and Physiology and Clinical Chief of Nephrology at NYULMC is the principle investigator of the cystinuria component of the consortium.
Advance registration for the event will be requested. Details and a registration form will be posted in the near future. If you would like to be included on the 2010 Cystinuria Symposium update mailing list, please send an e-mail to email@example.com.