Be Fashionable & Brave: Bravelets Jewelry Supports the ICF

bravelets maya

As a parent of two young ladies with cystinuria, I never feel like I do enough. I know, I make appointments, talk to the doctor, sit in the ER, wait for them to come out of the OR, but it just didn’t seem like enough, especially when I think about how much money some of the other diseases have for research and awareness. They have television, newspaper and magazine ads – that is if they are a well-known disease. What about our small group, the one people don’t know about – how do we raise money? I started exploring fund … Read more…

Education, Advocacy, Support, Highlight Sixth ICF Symposium

The International Cystinuria Foundation’s sixth symposium on Nov. 1, 2014 at New York University’s Langone Medical Center focused on a wide range of key issues, including new developments in patient care, research, medicine, patient advocacy, as well as the opportunity to speak face-to-face with others who share this journey in one way or another, as caregivers, patients, medical professionals, or pharmaceutical providers. For those unable to attend, the symposium was recorded and will soon be available for viewing. ICF President George Brown welcomed the diverse audience to the symposium, and shared the nonprofit organization’s gratitude for the generous support from … Read more…