As a parent of two young ladies with cystinuria, I never feel like I do enough. I know, I make appointments, talk to the doctor, sit in the ER, wait for them to come out of the OR, but it just didn’t seem like enough, especially when I think about how much money some of the other diseases have for research and awareness. They have television, newspaper and magazine ads – that is if they are a well-known disease.
What about our small group, the one people don’t know about – how do we raise money? I started exploring fund raisers. Traditional fundraisers that we have all purchased products from just won’t work – we are too spread out, all over the world in fact. Then I came across Bravelets, a family-owned business committed to giving back. Nonprofit organizations receive a donation equal to 10% of each purchase from Bravelets. It was simple. I would give it a try.
The Austin, Texas-based company offers jewelry tailored to a specific cause and designed to symbolize hope, strength and courage during the most difficult times. I registered the International Cystinuria Foundation, researched the color scheme for our specialized bracelets and necklaces (green for kidney disease awareness), and it was done. I was committed to seeing this work.
Each piece of jewelry costs between $25 to $42, and with each purchase, Bravelets donates $10 directly to the ICF to help support our organization’s mission. Within the past year, we have raised $310. It may be a drop in the bucket (pun intended), but it’s a start.
I am always looking for ideas or products that contribute to the ICF. I hope sales continue and the world becomes accustomed to hearing “I have cystinuria, let me tell you about it.”
To learn more about the ICF Bravelets, visit www.bravelets.com and search “cystinuria.”