Cystinuria is a chronic disease that can be controlled but not cured. Therefore, maintenance and prevention are important aspects of healthy living for people with cystinuria.
- Regular consultation with a knowledgeable specialist
- Annual CT or ultrasound tests to assess stone presence
- Regular urine testing to monitor cystine excretion
- Frequent at-home urine pH testing to ensure elevated pH for improved cystine solubility (if urinary alkalization is part of your treatment regimen)