Maintenance and Prevention

Cystinuria is a chronic disease that can be controlled but not cured.  Therefore, maintenance and prevention are important aspects of healthy living for people with cystinuria.

  • Regular consultation with a knowledgeable specialist
  • Annual CT or ultrasound tests to assess stone presence
  • Regular urine testing to monitor cystine excretion
  • Frequent at-home urine pH testing to ensure elevated pH for improved cystine solubility (if urinary alkalization is part of your treatment regimen)