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Thursday, 16 December 2010 22:36 Matthew Lewis

Today the results of a four year effort to test the potential effect of an herbal supplement on cystine stone burden were published in the Journal of Urological Research. The study, led by Dr. Stephen Erickson at the Mayo Clinic, evaluated the use of Cystone®, an herbal treatment that had been implicated in a case study…
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Saturday, 23 October 2010 12:54 Matthew Lewis

The Rare Kidney Stone Consortium has opened enrollment for the Cystinuria Registry at New York University. In this registry, patients with cystinuria will be enrolled and information collected about their condition annually…
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Tuesday, 19 October 2010 08:47 Matthew Lewis

On October 15th, 2010, new research on cystinuria was featured on the cover of one of the world’s top academic research journals, Science. The publication, available online, describes the detailed study of cystine crystalization. This unprecedented understanding of the process by which cystine aggregates…
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Tuesday, 23 March 2010 19:30 Matthew Lewis

The 4th Symposium of the International Cystinuria Foundation will be held on Saturday, July 10, 2010, at the NYU Langone Medical Center in New York City. Patients, families,physicians, and researchers are invited to attend. The biennial event is a forum for both disease education and community…
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Monday, 01 March 2010 22:41 Matthew Lewis

Dear ICF members, Many members of the cystinuric community have expressed an interest in a recurring newsletter. In response to this, the ICF is currently developing a plan to produce a regular publication both in print and online. The exact frequency of the newsletter has yet to be decided, and will largely…
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Tuesday, 19 January 2010 00:00 Matthew Lewis

Today we are launching the newest edition of the ICF website, unofficially the 4th version since the site’s inception in 2002. It is our hope that the new site design will allow for improved development and publishing of cystinuria-related resources. Some content and features from the former site may be temporarily…
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Jan2010_NIH

Monday, 11 January 2010 19:13 Matthew Lewis

Bethesda, MD – The ICF was present at the 2010 NIH Advancing Rare Disease Research meeting titled: The Intersection of Patient Registries, Biospecimen Repositories, and Clinical Data.  ICF President Matthew Lewis joined ICF Director Dr. David Goldfarb (NYU, Saint Vincent’s Hospital) and research…
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Saturday, 12 December 2009 09:54 Matthew Lewis

On October 5th, 2009, the National Institutes of Health (NIH) announced that they would be expanding the Rare Diseases Clinical Research Network, awarding $117 million among 19 new and existing consortia. The Consortium for Hereditary Causes of Nephrolithiasis and Kidney Failure (informally known as the Rare…
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