Eighth ICF Symposium – UPDATE!

New York Symposium on November 10, 2018 NYU Medical Center 550 1st Avenue, New York, NY 10016 Schedule: 8:00 a.m. Breakfast 9:00 a.m. Program begins 12:00 p.m. Break for light lunch 1:00 – 3:00 p.m. estimated ending time depending on attendance and discussion PLEASE RSVP to icfpatientprogram@gmail.com or send a private message to Gayle on the ICF Facebook page.

Frontiers in Cystinuria Research – London – 6th Oct 2018

Dr Toby Athersuch, a scientific researcher, and his colleagues from Imperial College London will be hosting a National Institute of Health (NIHR) funded event “Frontiers in Cystinuria Research” that will bring together patients, clinicians and researchers to discuss various perspectives relating to cystinuria treatment, research, education and patient engagement. The event is scheduled for the afternoon of Saturday 6th October, last approximately three hours, and will be held at Imperial College London on the South Kensington campus. It is anticipated that around 15 patients will be able to participate, and a similar number of clinical consultants and academic researchers will … Read more

ICF Patient to Patient Program – Orlando, FL – Oct 13th 2018

Do you have Cystinuria or are a care-giver for someone who does? We invite you to attend a presentation at the Castle Hotel in Orlando, FL from 11:00 a.m. to 1:00 p.m. on Saturday, October 13, 2018. There will be a full buffet lunch and the event is free, but you must register by emailing icfpatientprogram@gmail.com. More details to come! Castle Hotel 8629 International Dr. Orlando, FL 32819 www.castlehotelorlando.com