T-CUPS Study Still Ongoing

T-CUPS (Tolvaptan use in Cystinuria and Urolithiasis: A Pilot Study) is looking for cystinuria patients age 12-25 to participate in a pilot study of a novel treatment to reduce stone recurrence. This FDA-approved short-term study is being conducted at Boston Children’s Hospital. It involved daily medication for eight days, two overnight stays in our research unit, and careful monitoring. Participants will be compensated. Please help us to advance the state-of-art for cystinuria treatment! If you or someone you know might be interested in learning more about this study, please contact the research office. Cathy Matero – Clinical Research Program Administrator … Read more

Seventh ICF Symposium

The seventh ICF Symposium will be held August 13, 2016 in Dallas, Texas at the Dallas Marriott Suites Medical/Market Center Hotel. This is a once in a lifetime chance to meet many other people with Cystinuria and to listen and learn from some of the world’s most renowned doctors dealing with Cystinuria. The Symposium is free to attend, but registration is required—please send an email to ICF President George D. Brown at the2nd1mb@gmail.com. Discounted rooms at the hotel are available until 7/22/2016 and can be booked for Friday and Saturday night directly through the hotel here. The Symposium will start with breakfast … Read more