Because Cystinuria is a genetic disease, there is no way to prevent someone from getting Cystinuria, but with water, lifestyle and medication, you can learn to live with Cystinuria and reduce the number of stones and late night trips tot he ER.
- Regular consultation with a knowledgeable specialist
- Annual CT or ultrasound tests to assess stone presence
- Regular urine testing to monitor cystine excretion
- Frequent at-home urine pH testing to ensure elevated pH for improved cystine solubility (if urinary alkalization is part of your treatment regimen)