STRENGTHEN EDUCATE THE CYSTINURIC COMMUNITY
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Personal Stories People Have Shared
for Cystinuria Awareness Day
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If you would like to help represent ICF, to have your state recognize Cystinuria Awareness Day, please contact us.

LEARN MORE ABOUT Cystinuria Awareness Day

THE ICF

We aim to support a growing and strong group of patients, families, professionals, and friends by providing educational and health related resources to affected individuals worldwide. We also aim to promote knowledge of cystinuria within the research and medical communities in order to reduce kidney destruction, renal impairment, and subsequent health, vocational, and economic impact.

Resources

Learn about the latest in Cystinuria research and studies

Learn

Learn the basics of Cystinuria diagnosis and treatment

News

Cystinuria in the news

Events

There are different organizations that hold events, you are welcome to join in.

Cystinuria News

Cystinuria in the news.

‘Pharma Bro’ Fraudster Martin Shkreli Freed from Prison

‘Pharma Bro’ Fraudster Martin Shkreli Freed from Prison Original Story Here https://www.nationalreview.com/news/pharma-bro-martin-shkreli-freed-from-prison/ Convicted pharmaceutical fraudster Martin Shkreli, known publicly as “Pharma Bro,” was released from prison on Wednesday, and will spend the rest of his [...]

Gene therapy for kidney disease: targeting cystinuria

From: https://pubmed.ncbi.nlm.nih.gov/34982522/ Abstract Purpose of review: The aim of this study was to summarize recent findings in kidney gene therapy while proposing cystinuria as a model kidney disease target for genome engineering therapeutics. Recent findings: [...]

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