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Does your state currently recognize “Cystinuria Awareness Day” ?
If you would like to help represent ICF, to have your state recognize Cystinuria Awareness Day, please contact us.

LEARN MORE ABOUT Cystinuria Awareness Day

THE ICF

We aim to support a growing and strong group of patients, families, professionals, and friends by providing educational and health related resources to affected individuals worldwide. We also aim to promote knowledge of cystinuria within the research and medical communities in order to reduce kidney destruction, renal impairment, and subsequent health, vocational, and economic impact.

Resources

Learn about the latest in Cystinuria research and studies

RESOURCES & STUDIES

Learn

Learn the basics of Cystinuria diagnosis and treatment

LEARN ABOUT CYSTINURIA

News

Cystinuria in the news

CYSTINURIA NEWS

Events

There are different organizations that hold events, you are welcome to join in.

WHAT’S HAPPENING

Cystinuria News

Cystinuria in the news.

Sexual Dimorphism in Cystinuria- The Mitochondria Link

Sexual Dimorphism in Cystinuria- The Mitochondria Link Original Story Unravelling the role of mitochondrial Slc3a1 in regulating mitochondrial functions and sexual dimorphism in cystinuria CHINA, March 28, 2025 /EINPresswire.com/ -- Cystinuria is the most common inheritable cause [...]

New US product launch, VENXXIVA™ (tiopronin) Delayed-Release Tablets for the treatment of cystinuria

New US product launch, VENXXIVA™ (tiopronin) Delayed-Release Tablets for the treatment of cystinuria Original Story BOSTON--(BUSINESS WIRE)--Cycle Pharmaceuticals Limited (Cycle) announced today the launch of VENXXIVA (tiopronin) Delayed-Release Tablets, for the treatment of cystinuria, approved [...]

Advicenne Reaches a Significant Milestone With the US FDA in the Development of ADV7103 in Cystinuria

Advicenne Reaches a Significant Milestone With the US FDA in the Development of ADV7103 in Cystinuria Original Story PARIS--(BUSINESS WIRE)--Regulatory News: Advicenne (Euronext Growth Paris ALDVI – FR0013296746) a specialty pharmaceutical company dedicated to the [...]

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