On August 8, 2005, following the successful organization of the first Cystinuria Sympoiusm, CysFA was dissolved and the International Cystinuria Foundation was incorporated in its place to reflect the goal of reaching out to affected individuals worldwide. On March 30, 2006, the ICF was awarded 501(c)3 tax-exempt status by the Internal Revenue Service (IRS), and classified as a public charity. Since that time, the organization has developed an administration including a board of directors and officers. The website has undergone a number of revisions and continues to add educational material.
We are currently devoting much effort to hosting our annual Cystinuria Symposia, and aim to further develop the educational content of the online site. The future of the International Cystinuria Foundation is open ended, and highly dependent on the support of the cystinuric and medical communities. Most importantly, the Foundation is a means for the community to speak with one collective voice, and we intend to use that voice to effect changes that will return a benefit the community.