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So far Cystinuria.org has created 69 blog entries.

Türkiye – HÜDA PAR submits parliamentary question on cystinuria medication supply

By |2024-07-17T13:24:42-07:00July 25th, 2024|

HÜDA PAR submits parliamentary question on cystinuria medication supply HÜDA PAR Batman MP Serkan Ramanlı has submitted a parliamentary question to the Grand National Assembly of Turkey, addressing the difficulties cystinuria patients face in obtaining essential medication. In a formal question submitted to the Parliament Speaker’s Office, Ramanlı requested Health Minister Kemal Memişoğlu to provide [...]

Endo Launches Tiopronin Delayed-Release Tablets, Generic Version of THIOLA EC®

By |2024-07-15T08:49:02-07:00July 15th, 2024|

Endo Launches Tiopronin Delayed-Release Tablets, Generic Version of THIOLA EC® MALVERN, Pa. , July 15, 2024 /PRNewswire/ -- Endo, Inc. (OTCQX: NDOI) announced today the launch of tiopronin delayed-release tablets, a generic version of Travere Therapeutics' THIOLA EC ® . "We're proud to provide high-quality, affordable choices to healthcare providers and their appropriate patients," said Scott [...]

Over 300 surgeries

By |2024-06-24T08:36:53-07:00June 24th, 2024|

Over 300 surgeries Steven C I had my first cystine stone when I was 8 years old I am now 38 years old and I still have Cystinuria Stones I do take medication to try to help stop them from forming. My last surgery was in 2022. I have had over 300 surgeries [...]

The antioxidant l-Ergothioneine prevents cystine lithiasis in the Slc7a9−/− mouse model of cystinuria

By |2024-05-28T08:41:26-07:00June 4th, 2024|

The antioxidant l-Ergothioneine prevents cystine lithiasis in the Slc7a9−/− mouse model of cystinuria Abstract The high recurrence rate of cystine lithiasis observed in cystinuria patients highlights the need for new therapeutic options to address this chronic disease. There is growing evidence of an antioxidant defect in cystinuria, which has led to test antioxidant molecules as new therapeutic [...]

New tiopronin delayed-release tablets launch with patient support for the treatment of cystinuria in the US

By |2024-05-13T09:11:41-07:00May 13th, 2024|

New tiopronin delayed-release tablets launch with patient support for the treatment of cystinuria in the US Read Full Story BOSTON, May 13, 2024--(BUSINESS WIRE)--Cycle Pharmaceuticals Limited (Cycle) is pleased to announce the launch of tiopronin delayed-release tablets as a treatment option for patients with cystinuria.1 Tiopronin delayed-release tablets are available in 100 mg and 300 mg [...]

Kids and their battles with kidney stones

By |2024-04-29T09:47:28-07:00April 29th, 2024|

Kids and their battles with kidney stones Ivanhoe Newswire - Apr 28, 2024 - SEE ORIGINAL STORY When you think of kidney stones, you may think of middle-aged men. But that's changed dramatically over the last 20 years. More women are now experiencing them. 11% of Americans will have a kidney stone at some point. [...]

FDA grants orphan drug designation to ADV7103 for cystinuria

By |2024-03-25T13:32:46-07:00March 25th, 2024|

FDA grants orphan drug designation to ADV7103 for cystinuria Read Original Story Here The FDA has granted an orphan drug designation (ODD) to ADV7103 for the treatment of patients with cystinuria, according to a news release from Advicenne, the developer of the therapy.1 ADV7103 was also granted an ODD status by the FDA in [...]

Aeglea Cuts Majority of Staff Following Mixed Trial Results

By |2024-02-09T10:49:30-08:00February 9th, 2024|

Aeglea Cuts Majority of Staff Following Mixed Trial Results Published: Apr 12, 2023 - Original Story Wednesday, Aeglea Biotherapeutics announced it was reducing its headcount as part of a sweeping reorganization following mixed interim data from an ongoing Phase I/II study of its classical homocystinuria candidate pegtarviliase. As part of its strategic review, Aeglea is laying off all [...]

Tired of the Struggle

By |2024-02-09T10:41:58-08:00February 9th, 2024|

Tired of the Struggle Fj.T.O hola soy enfermo de cistinura desde que tenia 9 meses actuañmente tengo 34 años me han intervenido muchas veces por varios procedimientos como percutaneas ,uterescopia ,litotricia ect.. y todo para que después en poco tiempo me vuelva a salir otra piedra ahora estoy esperando para una nueva uteroscopia [...]

$11,000 saving on Penicillamine

By |2023-11-22T13:06:14-08:00November 22nd, 2023|

50 drugs at Mark Cuban's pharmacy with biggest cost reductions Original Story Here In 2023, Mark Cuban Cost Plus Drug Co. began selling two generic medications cheaper than their branded versions by more than $10,000. The two drugs are fingolimod hydrochloride, a multiple sclerosis medication, and penicillamine, which treats rheumatoid arthritis, metal toxicity and [...]

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