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So far Cystinuria.org has created 50 blog entries.

Chronic pain patients struggle to get opioid prescriptions filled, even as CDC eases guidelines

By |2023-03-17T13:23:37-07:00March 17th, 2023|

Chronic pain patients struggle to get opioid prescriptions filled, even as CDC eases guidelines Jessica Layman estimates she has called more than 150 doctors in the past few years in her search for someone to prescribe opioids for her chronic pain. “A lot of them are straight-up insulting,” said the 40-year-old, who lives [...]

Advicenne and SPA Announce an Exclusive Distribution Agreement for the Marketing of Sibnayal® in Italy, Spain and Portugal

By |2023-02-20T11:55:57-08:00February 20th, 2023|

Advicenne and SPA Announce an Exclusive Distribution Agreement for the Marketing of Sibnayal® in Italy, Spain and Portugal Sibnayal® will now be available in four of the five major European markets Significant expansion of commercial opportunities for Sibnayal® (potassium citrate/ potassium bicarbonate) Advicenne (Euronext Growth Paris ALDVI - FR0013296746) (Paris:ALDVI), a specialty pharmaceutical [...]

UK: Eight-year-old Austin cycling 96 miles from St Annes to Sheffield to say thank you for his hospital care

By |2022-12-13T10:14:36-08:00December 13th, 2022|

Eight-year-old Austin cycling 96 miles from St Annes to Sheffield to say thank you for his hospital care By Tony Durkin READ ORIGINAL STORY HERE A grateful eight-year-old boy is set to cycle the 96 miles from his Fylde home to Sheffield Children’s Hospital to say thank you for his ongoing specialist care. [...]

Awake patients can have kidney stones moved, blasted

By |2022-10-28T09:16:00-07:00October 28th, 2022|

Awake patients can have kidney stones moved, blasted See original Story Here Ultrasound can be used to move, reposition or break up kidney stones, all while the patient is awake, a new study finds. A new technique which combines the use of two ultrasound technologies may offer an option to move kidney stones [...]

Cystinuria and cystinosis are usually related to L-cystine: is this really the case for cystinosis? A physicochemical investigation at micrometre and nanometre scale

By |2022-08-05T09:16:49-07:00October 1st, 2022|

Cystinuria and cystinosis are usually related to L-cystine: is this really the case for cystinosis? A physicochemical investigation at micrometre and nanometre scale READ FULL STORY HERE DOWNLOAD PDF HERE Abstract Medical literature indicates clearly that cystinuria and cystinosis, two severe genetic pathologies, are related to the presence of abnormal L-cystine deposits. While L-cystine [...]

Cystinuria Market to Witness Notable Growth by 2030

By |2022-09-21T16:15:41-07:00September 21st, 2022|

Cystinuria Market to Witness Notable Growth by 2030 I know this is mostly for investors and not people with Cysntiuria, but It's still interesting.... :)  Maybe we should invest? Original Article HERE Reports And Data The Global Cystinuria Market report is a concise summary of the Cystinuria industry and offers deep insights into [...]

Cystinuria in Pregnancy

By |2022-08-05T09:27:12-07:00September 12th, 2022|

Cystinuria in Pregnancy READ FULL STORY HERE When cystinuria leads to calculi, stones, getting stuck within the urinary tract, this results in pain in the flank, upper abdomen, or the back. Typically, the pain advances to the lower abdomen or the groin and you also may suffer from urinary urgency/frequency, nausea and vomiting, [...]

Ca2+-mediated higher-order assembly of heterodimers in amino acid transport system b0,+ biogenesis and cystinuria

By |2022-08-05T09:00:48-07:00August 10th, 2022|

Ca2+-mediated higher-order assembly of heterodimers in amino acid transport system b0,+ biogenesis and cystinuria READ FULL STORY HERE Abstract Cystinuria is a genetic disorder characterized by overexcretion of dibasic amino acids and cystine, causing recurrent kidney stones and kidney failure. Mutations of the regulatory glycoprotein rBAT and the amino acid transporter b0,+AT, which [...]

Calcium ions tie cystine transporters for correct trafficking and function

By |2022-08-05T08:40:34-07:00August 5th, 2022|

Shedding light on the mechanisms of cystinuria Calcium ions tie cystine transporters for correct trafficking and function A team from the Max Planck Institute of Biophysics (Frankfurt am Main), The Jikei University School of Medicine (Tokyo) and Nara Medical University (Nara) in Japan explored the molecular mechanisms of a genetic disease called cystinuria [...]

Living life to the fullest despite having Cystinuria

By |2022-08-05T09:42:35-07:00July 27th, 2022|

Living life to the fullest despite having Cystinuria If you hear Sophie Popham talk about Cystinuria, you might not think kidney stones are all that painful. Not because kidney stones don’t cause excruciating pain, but because the outgoing, energetic 15-year-old, who was diagnosed with Cystinuria less than two years ago, is more excited about [...]

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