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So far Cystinuria.org has created 65 blog entries.

New tiopronin delayed-release tablets launch with patient support for the treatment of cystinuria in the US

By |2024-05-13T09:11:41-07:00May 13th, 2024|

New tiopronin delayed-release tablets launch with patient support for the treatment of cystinuria in the US Read Full Story BOSTON, May 13, 2024--(BUSINESS WIRE)--Cycle Pharmaceuticals Limited (Cycle) is pleased to announce the launch of tiopronin delayed-release tablets as a treatment option for patients with cystinuria.1 Tiopronin delayed-release tablets are available in 100 mg and 300 mg [...]

Kids and their battles with kidney stones

By |2024-04-29T09:47:28-07:00April 29th, 2024|

Kids and their battles with kidney stones Ivanhoe Newswire - Apr 28, 2024 - SEE ORIGINAL STORY When you think of kidney stones, you may think of middle-aged men. But that's changed dramatically over the last 20 years. More women are now experiencing them. 11% of Americans will have a kidney stone at some point. [...]

FDA grants orphan drug designation to ADV7103 for cystinuria

By |2024-03-25T13:32:46-07:00March 25th, 2024|

FDA grants orphan drug designation to ADV7103 for cystinuria Read Original Story Here The FDA has granted an orphan drug designation (ODD) to ADV7103 for the treatment of patients with cystinuria, according to a news release from Advicenne, the developer of the therapy.1 ADV7103 was also granted an ODD status by the FDA in [...]

Aeglea Cuts Majority of Staff Following Mixed Trial Results

By |2024-02-09T10:49:30-08:00February 9th, 2024|

Aeglea Cuts Majority of Staff Following Mixed Trial Results Published: Apr 12, 2023 - Original Story Wednesday, Aeglea Biotherapeutics announced it was reducing its headcount as part of a sweeping reorganization following mixed interim data from an ongoing Phase I/II study of its classical homocystinuria candidate pegtarviliase. As part of its strategic review, Aeglea is laying off all [...]

Tired of the Struggle

By |2024-02-09T10:41:58-08:00February 9th, 2024|

Tired of the Struggle Fj.T.O hola soy enfermo de cistinura desde que tenia 9 meses actuañmente tengo 34 años me han intervenido muchas veces por varios procedimientos como percutaneas ,uterescopia ,litotricia ect.. y todo para que después en poco tiempo me vuelva a salir otra piedra ahora estoy esperando para una nueva uteroscopia [...]

$11,000 saving on Penicillamine

By |2023-11-22T13:06:14-08:00November 22nd, 2023|

50 drugs at Mark Cuban's pharmacy with biggest cost reductions Original Story Here In 2023, Mark Cuban Cost Plus Drug Co. began selling two generic medications cheaper than their branded versions by more than $10,000. The two drugs are fingolimod hydrochloride, a multiple sclerosis medication, and penicillamine, which treats rheumatoid arthritis, metal toxicity and [...]

Cystinuria in Dogs: Symptoms, Causes, & Treatments

By |2023-10-20T14:54:03-07:00October 20th, 2023|

Cystinuria in Dogs: Symptoms, Causes, & Treatments Cystinuria in dogs is a medical condition that can cause kidney and bladder stones. The disorder is inherited, which means a dog is born with it. Technically, the condition is caused by a build up of the amino acid cystine in a dog’s urine. Usually, this [...]

Feds allege Keystone RV discriminated against worker with disability

By |2023-09-22T11:01:56-07:00September 22nd, 2023|

Feds allege Keystone RV discriminated against worker with disabilityOriginal Story: Adam Yahya Rayes HEREFederal officials filed suit Wednesday against major northern Indiana RV manufacturer Keystone for alleged disability discrimination against an employee.The U.S. Equal Employment Opportunity Commission suit says an employee with a disability was fired for taking time off to attend his medical appointments [...]

Asymptomatic?

By |2023-09-07T09:15:38-07:00September 7th, 2023|

Asymptomatic? Lindah I am now 58 and I live in Australia. It wasn't until I passed my first kidney stone when I was 22 that I was diagnosed with Cystinuria. Since then I have had multiple surgeries, from major surgery removing staghorn stone to keyhole surgery to laser using a camera. At present [...]

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