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So far Cystinuria.org has created 63 blog entries.

New technology painlessly moves and breaks up kidney stones

By |2023-05-30T09:31:10-07:00May 30th, 2023|

New technology painlessly moves and breaks up kidney stones See original story HERE A new technique that combines two ultrasound technologies may offer an option to move kidney stones out of the ureter with minimal pain and no anesthesia, according to a new feasibility study published in The Journal of Urology. The procedure involves [...]

$5,000 scholarships to 70 rare disease recipients in 2023

By |2023-04-04T11:43:01-07:00April 4th, 2023|

The #RAREis Scholarship Application is open March 8th – April 13th, 2023 at 2:00 PM ET Pursue Your Dreams through the #RAREis Scholarship Fund Living with a rare disease means managing unique challenges, including frequent doctor visits, rigorous treatment regimens and hospitalizations, and exposure risks. While quality and duration of life continues to improve [...]

Chronic pain patients struggle to get opioid prescriptions filled, even as CDC eases guidelines

By |2023-03-17T13:23:37-07:00March 17th, 2023|

Chronic pain patients struggle to get opioid prescriptions filled, even as CDC eases guidelines Jessica Layman estimates she has called more than 150 doctors in the past few years in her search for someone to prescribe opioids for her chronic pain. “A lot of them are straight-up insulting,” said the 40-year-old, who lives [...]

Advicenne and SPA Announce an Exclusive Distribution Agreement for the Marketing of Sibnayal® in Italy, Spain and Portugal

By |2023-02-20T11:55:57-08:00February 20th, 2023|

Advicenne and SPA Announce an Exclusive Distribution Agreement for the Marketing of Sibnayal® in Italy, Spain and Portugal Sibnayal® will now be available in four of the five major European markets Significant expansion of commercial opportunities for Sibnayal® (potassium citrate/ potassium bicarbonate) Advicenne (Euronext Growth Paris ALDVI - FR0013296746) (Paris:ALDVI), a specialty pharmaceutical [...]

UK: Eight-year-old Austin cycling 96 miles from St Annes to Sheffield to say thank you for his hospital care

By |2022-12-13T10:14:36-08:00December 13th, 2022|

Eight-year-old Austin cycling 96 miles from St Annes to Sheffield to say thank you for his hospital care By Tony Durkin READ ORIGINAL STORY HERE A grateful eight-year-old boy is set to cycle the 96 miles from his Fylde home to Sheffield Children’s Hospital to say thank you for his ongoing specialist care. [...]

Awake patients can have kidney stones moved, blasted

By |2022-10-28T09:16:00-07:00October 28th, 2022|

Awake patients can have kidney stones moved, blasted See original Story Here Ultrasound can be used to move, reposition or break up kidney stones, all while the patient is awake, a new study finds. A new technique which combines the use of two ultrasound technologies may offer an option to move kidney stones [...]

Cystinuria and cystinosis are usually related to L-cystine: is this really the case for cystinosis? A physicochemical investigation at micrometre and nanometre scale

By |2022-08-05T09:16:49-07:00October 1st, 2022|

Cystinuria and cystinosis are usually related to L-cystine: is this really the case for cystinosis? A physicochemical investigation at micrometre and nanometre scale READ FULL STORY HERE DOWNLOAD PDF HERE Abstract Medical literature indicates clearly that cystinuria and cystinosis, two severe genetic pathologies, are related to the presence of abnormal L-cystine deposits. While L-cystine [...]

Cystinuria Market to Witness Notable Growth by 2030

By |2022-09-21T16:15:41-07:00September 21st, 2022|

Cystinuria Market to Witness Notable Growth by 2030 I know this is mostly for investors and not people with Cysntiuria, but It's still interesting.... :)  Maybe we should invest? Original Article HERE Reports And Data The Global Cystinuria Market report is a concise summary of the Cystinuria industry and offers deep insights into [...]

Cystinuria in Pregnancy

By |2022-08-05T09:27:12-07:00September 12th, 2022|

Cystinuria in Pregnancy READ FULL STORY HERE When cystinuria leads to calculi, stones, getting stuck within the urinary tract, this results in pain in the flank, upper abdomen, or the back. Typically, the pain advances to the lower abdomen or the groin and you also may suffer from urinary urgency/frequency, nausea and vomiting, [...]

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