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So far Cystinuria.org has created 23 blog entries.

Christina Davis

By |2021-06-24T08:31:01-07:00June 17th, 2021|

Christina Davis I am 61 years old. I have suffered with Cystinuria since I was about 9yrs. Although I was not diagnosed until I was 17. When I was taking my college physical I was told what I had. I have suffered with this disease for years. What saved me was Thiola. I don't [...]

Helen’s Story

By |2021-06-17T16:47:17-07:00June 16th, 2021|

Helen's Story Helen Guerra, a 20-year-old resident of Miami, has lived more than half of her young life diagnosed with a rare kidney disease called cystinuria. She led a fulfilling childhood filled with a love for reading, dancing, and all things Disney. Helen’s life changed at age 9, however, when she began experiencing [...]

Sierra Gibbs

By |2021-06-18T08:59:25-07:00June 16th, 2021|

Sierra Gibbs Sierra Gibbs is a sophomore at California State University, Long Beach. Her life may seem like everybody else’s around her, but her story is not.  At 13, while growing up in Colfax, CA, she was diagnosed with Cystinuria, an incurable, rare and debilitating disease she knew nothing about.  “It’s hard to look [...]

Michael’s Story

By |2021-06-15T08:10:40-07:00June 14th, 2021|

A Patient's Story: Michael Eckstut (New Jersey) Skillman resident Michael Eckstut, 69, enjoys a full and rewarding life in his roles as a husband, a father to three grown children, and a successful executive at a pharmaceutical services company. Although you wouldn’t know it judging by his active lifestyle and positive outlook, Michael has [...]

Leah’s Story

By |2021-06-14T10:11:58-07:00June 14th, 2021|

Leah's Story - Life with Cystinuria Leah, a 42-year-old resident of Montgomery, Michigan, has struggled with kidney problems from the incredibly young age of 2. Her journey of uncovering the truth behind these medical issues would take 40 years of incorrect diagnoses, six different urologists, losing her right kidney, and immense pain that made [...]

Teva Announces the U.S. Launch of the First Generic Version of THIOLA® (tiopronin) tablets

By |2021-06-14T10:05:47-07:00May 18th, 2021|

Teva Announces the U.S. Launch of the First Generic Version of THIOLA® (tiopronin) tablets TEL AVIV, Israel & PARSIPPANY, N.J.--(BUSINESS WIRE)-- Teva Pharmaceuticals, a U.S. affiliate of Teva Pharmaceutical Industries Ltd. (NYSE and TASE: TEVA), today announced its launch of the first available generic version, in the U.S., of THIOLA® (tiopronin) tablets, indicated, [...]

α-Lipoic Acid (ALA) Improves Cystine Solubility in Cystinuria: Report of 2 Cases

By |2021-06-14T10:05:47-07:00March 26th, 2021|

α-Lipoic Acid (ALA) Improves Cystine Solubility in Cystinuria: Report of 2 Cases Cystinuria is an autosomal recessive disorder characterized by excessive urinary excretion of cystine, resulting in recurrent cystine kidney stones, often presenting in childhood. Current treatment options for cystinuria include dietary and/or fluid measures and potassium citrate to reduce cystine excretion and/or [...]

Dr Goldfarb on Corona Virus

By |2021-06-14T10:05:48-07:00August 10th, 2020|

Coronavirus News: COVID-19 increases urgency for Tablo Hemodialysis Systems "We think 30% of ICU patients are developing acute kidney injury," said Dr. David Goldfarb, Chief of Nephrology at New York Harbor VA Medical Center. Dr. Goldfarb said he could not predict this kind of system failure that occurred with patients infected with the [...]

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