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So far Cystinuria.org has created 76 blog entries.

Asymptomatic?

By |2023-09-07T09:15:38-07:00September 7th, 2023|

Asymptomatic? Lindah I am now 58 and I live in Australia. It wasn't until I passed my first kidney stone when I was 22 that I was diagnosed with Cystinuria. Since then I have had multiple surgeries, from major surgery removing staghorn stone to keyhole surgery to laser using a camera. At present [...]

2022 highlights in stone disease

By |2023-08-25T09:53:55-07:00August 25th, 2023|

Year in review: 2022 highlights in stone disease Thomas Chi, MD, discusses 2022 milestones in stone disease and looks ahead to what might be on the horizon for the field in the coming year. The past year has brought about some incredible strides in urology, spanning everything from advances in treatments to [...]

Cystine Stones: Developments in Minimally Invasive Surgery and Their Impact on Morbidity and Stone Clearance

By |2023-06-05T13:39:19-07:00June 20th, 2023|

Cystine Stones: Developments in Minimally Invasive Surgery and Their Impact on Morbidity and Stone Clearance SEE FULL ARTICLE HERE 1Department of Urology, Warwick Hospital, Warwick, UK; 2Department of Urology, Sismanogleio Hospital, National and Kapodistrian University of Athens, Athens, Greece; 3Department of Urology, University Hospital Southampton, Southampton, UK Correspondence: Bhaskar K Somani, University Hospital Southampton [...]

New technology painlessly moves and breaks up kidney stones

By |2023-05-30T09:31:10-07:00May 30th, 2023|

New technology painlessly moves and breaks up kidney stones See original story HERE A new technique that combines two ultrasound technologies may offer an option to move kidney stones out of the ureter with minimal pain and no anesthesia, according to a new feasibility study published in The Journal of Urology. The procedure involves [...]

$5,000 scholarships to 70 rare disease recipients in 2023

By |2023-04-04T11:43:01-07:00April 4th, 2023|

The #RAREis Scholarship Application is open March 8th – April 13th, 2023 at 2:00 PM ET Pursue Your Dreams through the #RAREis Scholarship Fund Living with a rare disease means managing unique challenges, including frequent doctor visits, rigorous treatment regimens and hospitalizations, and exposure risks. While quality and duration of life continues to improve [...]

Chronic pain patients struggle to get opioid prescriptions filled, even as CDC eases guidelines

By |2023-03-17T13:23:37-07:00March 17th, 2023|

Chronic pain patients struggle to get opioid prescriptions filled, even as CDC eases guidelines Jessica Layman estimates she has called more than 150 doctors in the past few years in her search for someone to prescribe opioids for her chronic pain. “A lot of them are straight-up insulting,” said the 40-year-old, who lives [...]

Advicenne and SPA Announce an Exclusive Distribution Agreement for the Marketing of Sibnayal® in Italy, Spain and Portugal

By |2023-02-20T11:55:57-08:00February 20th, 2023|

Advicenne and SPA Announce an Exclusive Distribution Agreement for the Marketing of Sibnayal® in Italy, Spain and Portugal Sibnayal® will now be available in four of the five major European markets Significant expansion of commercial opportunities for Sibnayal® (potassium citrate/ potassium bicarbonate) Advicenne (Euronext Growth Paris ALDVI - FR0013296746) (Paris:ALDVI), a specialty pharmaceutical [...]

UK: Eight-year-old Austin cycling 96 miles from St Annes to Sheffield to say thank you for his hospital care

By |2022-12-13T10:14:36-08:00December 13th, 2022|

Eight-year-old Austin cycling 96 miles from St Annes to Sheffield to say thank you for his hospital care By Tony Durkin READ ORIGINAL STORY HERE A grateful eight-year-old boy is set to cycle the 96 miles from his Fylde home to Sheffield Children’s Hospital to say thank you for his ongoing specialist care. [...]

Awake patients can have kidney stones moved, blasted

By |2022-10-28T09:16:00-07:00October 28th, 2022|

Awake patients can have kidney stones moved, blasted See original Story Here Ultrasound can be used to move, reposition or break up kidney stones, all while the patient is awake, a new study finds. A new technique which combines the use of two ultrasound technologies may offer an option to move kidney stones [...]

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