Strength and perseverance NOTE: this is an update to their original story HERE Strength and perseverance are the two words I’ve used in describing any individual with Cystinuria…. and that means my 3 Bare Kids as well. I have also been quoted in saying “to live your life to the fullest despite the physical [...]
#stonesurvior My name is Bee Salinas, I am 33 years old and I was diagnosed with cystinuria when I was 18 months old. I have been through countless procedures 25 to be exact. Growing up I didn't get the normal childhood, I grew up in hospitals and was home schooled for a large portion [...]
Ella-Louise Gilbert - UK Hi, my name is Ella! I am 22 years old and I live in the United Kingdom, but I was born and raised in Belgium. I was diagnosed with Cystinuria when I was just 5 years old and I've had 11 surgeries and counting. Growing up and attending school with [...]
Christina Davis I am 61 years old. I have suffered with Cystinuria since I was about 9yrs. Although I was not diagnosed until I was 17. When I was taking my college physical I was told what I had. I have suffered with this disease for years. What saved me was Thiola. I don't [...]
Helen's Story Helen Guerra, a 20-year-old resident of Miami, has lived more than half of her young life diagnosed with a rare kidney disease called cystinuria. She led a fulfilling childhood filled with a love for reading, dancing, and all things Disney. Helen’s life changed at age 9, however, when she began experiencing [...]
Sierra Gibbs Sierra Gibbs is a sophomore at California State University, Long Beach. Her life may seem like everybody else’s around her, but her story is not. At 13, while growing up in Colfax, CA, she was diagnosed with Cystinuria, an incurable, rare and debilitating disease she knew nothing about. “It’s hard to look [...]
A Patient's Story: Michael Eckstut (New Jersey) Skillman resident Michael Eckstut, 69, enjoys a full and rewarding life in his roles as a husband, a father to three grown children, and a successful executive at a pharmaceutical services company. Although you wouldn’t know it judging by his active lifestyle and positive outlook, Michael has [...]
Leah's Story - Life with Cystinuria Leah, a 42-year-old resident of Montgomery, Michigan, has struggled with kidney problems from the incredibly young age of 2. Her journey of uncovering the truth behind these medical issues would take 40 years of incorrect diagnoses, six different urologists, losing her right kidney, and immense pain that made [...]
Teva Announces the U.S. Launch of the First Generic Version of THIOLA® (tiopronin) tablets TEL AVIV, Israel & PARSIPPANY, N.J.--(BUSINESS WIRE)-- Teva Pharmaceuticals, a U.S. affiliate of Teva Pharmaceutical Industries Ltd. (NYSE and TASE: TEVA), today announced its launch of the first available generic version, in the U.S., of THIOLA® (tiopronin) tablets, indicated, [...]
α-Lipoic Acid (ALA) Improves Cystine Solubility in Cystinuria: Report of 2 Cases Cystinuria is an autosomal recessive disorder characterized by excessive urinary excretion of cystine, resulting in recurrent cystine kidney stones, often presenting in childhood. Current treatment options for cystinuria include dietary and/or fluid measures and potassium citrate to reduce cystine excretion and/or [...]
